On April 30th, 2012 shortly after her 2nd birthday, my youngest daughter Ginny Rose was rushed to the hospital by ambulance when I noticed her laying in the floor lethargic and seizing. The EMT’s told me I hadn’t witnessed a seizure which I knew to be false, because I myself have seizures when my sugar levels get low. While at the hospital she had another seizure while they were trying to put an IV in her and then the hospital staff decided her best option was to go to MUSC for closer and better Observation. That first night at MUSC was horrible. She was so lethargic and doped up from all the medications she was on. The second day my family came into town, my 16 year old sister, my mother, and my 24 year old sister because the doctors had found that my baby had suffered a Stroke at 2 years old and they were talking about doing an emergency surgery on her brain. When my family got to the hospital, things got a tad crazy, she started seizing again, and with everyone in the room it caused her to stop breathing. (SCARIEST MOMENT OF MY LIFE EVER up to this point). The next day of course DSS stepped in and my kids were taken from me temporarily while they did an investigation of child abuse and neglect. 2 1/2 weeks she was at MUSC, toward the end of her stay there, they found a birth defect in her brain. The main blood vessel/artery that runs through it was very narrow, so when it drained it drained spinal fluid and blood into her brain making it look as though it was hemmoraghing evidently causing the seizures, which caused the right brain stroke.
June 7th, the kids were released back into my custody and home where they belonged, little miss Ginny was doing great. She was on anti-seizure medicine and taking it daily and regularly as directed. Then on June 30th, I took her to the ER because she looked a little lethargic and she was running a fever. They found that she had a UTI, and treated her for it and sent us home. On July 2nd, 2012 I got a phone call while I was at work that she was going to the hospital by ambulance. I left work immediately and met her there. When I got to her she was on life support. After talking to the baby sitter, and getting her version of the story; The baby told her she was tired and wanted to take a nap, so she laid her down went to check on her 30 minutes later and she wasn’t breathing and she couldn’t find a heartbeat. She moved her to the living room floor, started CPR and called 911.
I called my mother immediately and her and my little sister and big sister came straight here. They got in around midnight. My mother, my oldest daughter’s father and I proceeded to the hospital. At that point we were told she suffered something she may not recover from. The showed us her ct scans where there was no white brain matter left, and informed us we might want to think about bringing the family in to say good bye. The next night she was officially declared brain dead. The family arrived that night and the next morning July 4th, we said goodbye to my precious little angel. The Hardest thing I’ve ever had to do, say goodbye to my own daughter in a way that no mother should ever have to. Again DSS stepped in and removed the children for suspect of abuse and neglect. My children went to my dad’s this time with his wife and my 24 year old sister. Thus they remain there.
The hospital staff and doctors who worked intricately with her the first time she was there and in her last days, strongly believe that the baby was suffocated or smothered. I truly DO NOT believe this. Their evidence is based on her CT scan of the white brain matter being completely gone which suggests she’d of had lack of oxygen to the brain for 45 minutes or more. They preformed and autopsy and we had her cremated in time for her memorial service on July 6th. I lost my house the same day.
Now on month three since she died, I am still waiting on a cause of death, it’s extremely frustrating. My kids are still with my parents who seem to be doing everything they can to make this a living hell for me not even thinking about how I feel or the fact that I lost MY DAUGHTER. I went back to school in August one because I want to better my education for a shot at a decent life for my kids and two to keep my mind busy on other things than what’s going on. I’m constantly down talked because of what happened or what isn’t happening because I’m trying to save up the money to get another house so my kids can come home to me where they belong. Instead of looking at things that way everyone is criticizing what I don’t do like I have a choice. Dss says my kids can’t come home until I have another house for them to come home to, and when we go to court next month there may be other things like parenting classes or something along those terms. I’m slowing growing mentally agrravated and angry and fed up with everyone and everything around me. I will grieve eventually I’m sure, but with all the bullshit and drama around me mostly from my family, which is kinda sick, I haven’t really had the time to do so. My son is almost crawling and I’m going to miss that, my baby turned four and I missed that! Shit just sucks right now. I would never wish any of this on my worse enemy…
The craziness of My Life 